| Description |
1 online resource (xii, 251 pages). |
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text txt rdacontent |
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computer c rdamedia |
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online resource cr rdacarrier |
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text file |
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PDF |
| Series |
The culture and politics of health care work |
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Culture and politics of health care work.
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| Contents |
1992: Beginning -- 1992: So much to learn -- 1992: No easy answers and little to offer -- 1994: Too many drugs, no medication -- 1994: Being mindful of the subtext -- 1994: Weekend on call -- 1994: Christmas -- 1995: Another support group -- 1995: Mothers and children -- 1995: Decisions and revisions -- 1995: Colleagues and families -- 1995: So many stories and some new faces -- 1996: Some hope in the despair -- 1996: Hit early, hit hard -- 1997: Amazing changes -- 1999: Despite our best intentions -- 1999: Coping with a different paradigm -- 2000: Going home. |
| Note |
Description based on print version record and CIP data provided by publisher; resource not viewed. |
| Bibliography |
Includes bibliographical references. |
| Summary |
"I am an AIDS doctor. When I began that work in 1992, we knew what caused AIDS, how it spread, and how to avoid getting it, but we didn't know how to treat it or how to prevent our patients' seemingly inevitable progression toward death. The stigma that surrounded AIDS patients from the very beginning of the epidemic in the early 1980s continued to be harsh and isolating. People looked askance at me: What was it like to work in that kind of environment with those kinds of people? My patients are 'those kinds of people.' They are an array and a combination of brave, depraved, strong, entitled, admirable, self-centered, amazing, strange, funny, daring, gifted, exasperating, wonderful, and sad. And more. At my clinic most of the patients are indigent and few have had an education beyond high school, if that. Many are gay men and many of the patients use or have used drugs. They all have HIV, and in the early days far too many of them died. Every day they brought us the stories of their lives. We listened to them and we took care of them as best we could."--The Introduction In 1992, Dr. Susan C. Ball began her medical career taking care of patients with HIV in the Center for Special Studies, a designated AIDS care center at a large academic medical center in New York City. Her unsentimental but moving memoir of her experiences bridges two distinct periods in the history of the epidemic: the terrifying early years in which a diagnosis was a death sentence and ignorance too often eclipsed compassion, and the introduction of antiviral therapies that transformed AIDS into a chronic, though potentially manageable, disease. Voices in the Band also provides a new perspective on how we understand disease and its treatment within the context of teamwork among medical personnel, government agencies and other sources of support, and patients. Deftly bringing back both the fear and confusion that surrounded the disease in the early 1990s and the guarded hope that emerged at the end of the decade, Dr. Ball effectively portrays the grief and isolation felt by both the patients and those who cared for them using a sharp eye for detail and sensitivity to each patient's story. She also recounts the friendships, humor, and camaraderie that she and her colleagues shared working together to provide the best care possible, despite repeated frustrations and setbacks. As Dr. Ball and the team at CSS struggled to care for an underserved population even after game-changing medication was available, it became clear to them that medicine alone could not ensure a transition from illness to health when patients were suffering from terrible circumstances as well as a terrible disease |
| Language |
English. |
| Subject |
AIDS (Disease) -- New York (State) -- New York -- History.
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AIDS (Disease) -- Patients -- New York (State) -- New York.
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Physician and patient.
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Acquired Immunodeficiency Syndrome -- history |
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HIV Infections -- history |
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History, 20th Century |
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Patient Care -- history |
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Physician-Patient Relations |
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New York (N.Y.) |
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Sida -- New York (État) -- New York -- Histoire.
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Sidéens -- New York (État) -- New York.
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Médecine -- Histoire -- 20e siècle.
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Relations médecin-patient.
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POLITICAL SCIENCE -- Public Policy -- Social Security.
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POLITICAL SCIENCE -- Public Policy -- Social Services & Welfare.
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MEDICAL -- AIDS & HIV.
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AIDS (Disease)
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AIDS (Disease) -- Patients
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New York (State) -- New York
https://id.oclc.org/worldcat/entity/E39QbtfRvQh7864Jh4rDGBFDWc
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| Genre/Form |
Personal Narrative |
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History
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Personal narratives.
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Récits personnels.
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| Other Form: |
Print version: Voices in the band Ithaca ; ILR Press, an imprint of Cornell University Press, 2015. 9780801453625 (cloth : alk. paper) (DLC) 2014034038 |
| ISBN |
9780801455414 ebook |
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0801455413 |
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9780801453625 cloth : alk. paper |
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0801453623 cloth : alk. paper |
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9780801455421 (electronic bk.) |
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0801455421 (electronic bk.) |
| Standard No. |
10.7591/9780801455421 doi |
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AU@ 000056944605 |
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AU@ 000066771148 |
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DEBBG BV042623045 |
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DEBBG BV044184935 |
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DEBSZ 452560799 |
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DEBSZ 484741586 |
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DKDLA 820120-katalog:999926402905765 |
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GBVCP 882888838 |
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NZ1 16037593 |
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AU@ 000072026556 |
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