Kids Library Home

Welcome to the Kids' Library!

Search for books, movies, music, magazines, and more.

     
Available items only
E-Books/E-Docs
Author Birmingham, Karen. Author.

Title Pioneering ethics in a longitudinal study : the early development of the ALSPAC Ethics and Law Committee / Karen Birmingham ; foreword by Jean Golding.

Imprint Bristol : Policy Press, 2018.

Copies

Location Call No. OPAC Message Status
 Axe JSTOR Open Ebooks  Electronic Book    ---  Available
Description 1 online resource (136 pages)
text txt rdacontent
computer c rdamedia
online resource cr rdacarrier
data file rda
Summary "Available Open Access under CC-BY-NC licence The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed." The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed."
Language English.
Subject Research -- Moral and ethical aspects.
Families -- Research -- Moral and ethical aspects.
Longitudinal method -- Moral and ethical aspects.
Age groups.
Age groups: children.
Social groups.
Society and culture: general.
Society and social sciences Society and social sciences.
SOCIAL SCIENCE -- Research.
Research -- Moral and ethical aspects. (OCoLC)fst01095225
Indexed Term Avon Longitudinal Study of Parents and Children
Children of the 90s
Genetic Epidemiology
Longitudinal Birth Cohorts
Research Ethics Committees
Genre/Form Electronic books.
Electronic books.
Other Form: 1447340426
ISBN 9781447340423 (electronic bk.)
1447340426 (electronic bk.)
Standard No. 10.1332/9781447340423 doi

 
    
Available items only