| Description |
1 online resource (ii, 103 pages) : b (color illustrations) |
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text txt rdacontent |
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computer c rdamedia |
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online resource cr rdacarrier |
| Note |
"October 2021"--Cover. |
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John E. Dicken, Director, Health Care"--Page 42. |
| Bibliography |
Includes bibliographical references. |
| Contents |
Background. -- Multiple factors make diagnosing rare diseases challenging challenges to identifying the costs of rare diseases. -- Although limited, available research suggests to costs of rare diseases can be substantial. -- Effects of undiagnosed, misdiagnosed, and untreated rare diseases. -- Agency comments. -- Appendices. |
| Summary |
By definition, few people have any specific rare disease. But there are many different rare diseases--about 7,000--and as a result, an estimated 30 million people in the United States have one or more of them. About half of those with a rare disease are children. Often genetic, many rare diseases are chronic, progressive (they worsen over time), and life-threatening. Relatively little is known about the costs of rare diseases, either individually or collectively. GAO examined, among other things, the challenges to diagnosing rare diseases and what is known about their costs. |
| Note |
Description based on online resource; title from PDF cover page (GAO, viewed October 19, 2021). |
| Subject |
Rare diseases -- Diagnosis -- United States.
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Rare diseases -- United States -- Costs.
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Rare diseases -- Treatment -- United States.
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Rare diseases -- Treatment -- United States -- Costs.
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Diagnostic errors -- Risk assessment -- United States.
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Diagnostic errors -- United States -- Costs.
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Maladies rares -- États-Unis -- Coût.
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Maladies rares -- Traitement -- États-Unis.
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Maladies rares -- Traitement -- États-Unis -- Coût.
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Erreurs de diagnostic -- Évaluation du risque -- États-Unis.
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Erreurs de diagnostic -- États-Unis -- Coût.
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United States. (OCoLC)fst01204155 https://id.oclc.org/worldcat/entity/E39PBJtxgQXMWqmjMjjwXRHgrq
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| Added Author |
Dicken, John E., author.
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| Gpo Item No. |
0546-D (online) |
| Sudoc No. |
GA 1.13:GAO-22-104235 |
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