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Title Genetic Privacy : an Evaluation of the Ethical and Legal Landscape / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho.

Imprint London : Imperial College Press, 2013.

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Location Call No. OPAC Message Status
 Axe EBSCO Clinical Nursing E-Book  Electronic Book    ---  Available
Description 1 online resource
text txt rdacontent
computer c rdamedia
online resource cr rdacarrier
Bibliography Includes bibliographical references and index.
Contents The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What -- if anything -- is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon.
Note Print version record.
Summary Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepts such as notions of what constitute the personal, the context of privacy, the significance and impact of the relational interests of others who may share the same genetic inheritance, and mechanisms for the protection of privacy (as well as of their limitations), among others. More specifically, the discussions in this volume encourages us to think broadly about privacy, as encompassing values that are entailed in the sociality of context and of relations, and also as freedom from illegitimate and excessive surveillance. A long-standing question that continues to challenge us is whether genetic information should be regarded as exceptional, as it is often perceived. A conclusion that could be derived from this volume is that while genetic information may be significant, it is not exceptionally so. The work presented in this volume underlines the continuing and growing relevance of notions of privacy to genomic science, and the need to take ownership of a genetic privacy for the future through broad, rigorous and open discussion. Contributors: Alastair V. Campbell, Benjamin Capps, Jacqueline J.L. Chin, Oi Lian Kon, Kenji Matsui, Thomas H. Murray, Nazirudin Mohd Nasir, Dianne Nicol, Anh Tuan Nuyen, Onora O'Neill, Margaret Otlowski, Yvette van der Eijk, Chunshui Wang, Ross S. White.
Subject Human genetics -- Moral and ethical aspects.
Bioethics.
Morals.
Diagnostic Services.
Genetic Techniques.
Confidentiality.
Genetic Services.
Diagnostic Techniques and Procedures.
Civil Rights.
Preventive Health Services.
Patient Rights.
Investigative Techniques
Humanities.
Diagnosis.
Health Services.
Psychology, Social.
Behavior and Behavior Mechanisms
Community Health Services.
Human Rights.
Analytical, Diagnostic and Therapeutic Techniques and Equipment
Social Control, Formal.
Health Care Facilities, Manpower, and Services
Psychiatry and Psychology
Health Care Economics and Organizations
Delivery of Health Care.
Sociology.
Social Sciences.
Anthropology, Education, Sociology and Social Phenomena
Genetic Privacy -- ethics.
Privacy.
Bioethical Issues.
Jurisprudence.
Genetic Privacy.
Genetic Testing.
Ethics.
Genetic Privacy -- legislation & jurisprudence.
Genetic Testing -- ethics.
MEDICAL -- Ethics.
Bioethics. (OCoLC)fst00832038
Human genetics -- Moral and ethical aspects. (OCoLC)fst00963085
Genre/Form Electronic books.
Added Author Kaan, Terry, editor.
Ho, W. Calvin, editor.
Other Form: Print version: Genetic privacy (Imperial College Press). Genetic privacy. Hackensack, NJ : Imperial College Press, 2013 9781783263059 (DLC) 2013022067 (OCoLC)847112445
ISBN 9781783263066 (electronic bk.)
1783263067 (electronic bk.)
9781783263059
1783263059
Standard No. AU@ 000052905228
DEBBG BV041572447
DEBBG BV043089670
DEBBG BV044177174
DEBSZ 423654268
NZ1 15912898

 
    
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