| Description |
1 online resource (248 pages) |
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text txt rdacontent |
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computer c rdamedia |
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online resource cr rdacarrier |
| Series |
Embodying inequalities |
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Embodying inequalities.
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| Contents |
Cover -- Half Title -- Series Information -- Title Page -- Copyright Page -- Contents -- List of contributors -- Foreword -- References -- Acknowledgements -- Introduction -- Defining and defying chronicity -- Care and the politics of deservingness -- Structure of the book -- Concluding remarks -- Notes -- References -- 1 A house of cards: Chronicity, care packages and a 'good life' -- Background -- Methods -- Theoretical framework: Temporality, ethics and care -- Clarissa's struggle and the house of cards -- Temporal/spatial reconfiguration: a discussion -- Relationality: a discussion |
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Conclusion -- Notes -- References -- 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery -- Deserving and undeserving of care -- (Un)Deservingness, attention and disregard -- Shaping a landscape of care through disregard -- Disregarded costs and the disappearance of medical equipment -- Claims to deservingness and bureaucratic mechanisms of disregard -- Durable medical equipment 'within reach' -- Snowbirds -- 'The only way to be heard': Inaudibility and absent complaints -- Ms Donovan -- Conclusion -- Notes -- References |
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3 Publicly privatised: Relative care support and the neoliberal reform in Finland -- Introduction -- Two facets of privatisation in the care system -- Relative caregivers in Archipelago Town and municipal support -- Families, relatives and caregiving practices in Archipelago Town -- Struggling with closed doors -- The professionalism of relative care -- The difference between relative caregivers and care workers -- Conclusion -- Notes -- References -- 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support -- Introduction |
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'Official' paperwork -- The fuss and trust of relatedness -- 'Getting it all sorted': (Mis)adventures in bureaucratic hassle -- The state as a bad relative -- Conclusion -- References -- 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania -- Introduction -- Multiple assemblages of care around people with albinism -- The reduction of institutional care and the 'NGOisation' of the nation state -- Kin-based care and humanitarian discourses in Ilula: Florentina's experiences |
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(In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others -- Conclusion -- Note -- References -- 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state -- From comorbidity to syndemics of alcoholism and marginality -- Five centuries of alcoholisation -- Drinking at the margins -- Care for whom? Drinking patterns and the possibility of care -- Medical (un)care: Governmental health providers -- Evangelicals and alcohol: Healing within the community -- Conclusions -- Acknowledgements -- Notes -- References |
| Note |
7 When 'care' leads to 'chronicity': Exploring the changing contours of care of homeless people living on the streets in India. |
| Summary |
Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing. |
| Note |
Online resource; title from digital title page (viewed on March 17, 2022). |
| Subject |
Chronically ill -- Social conditions.
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Chronic diseases -- Social aspects.
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Chronically ill -- Mental health.
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Maladies chroniques -- Aspect social.
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SOCIAL SCIENCE -- Anthropology -- Physical.
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Chronic diseases -- Social aspects
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Chronically ill -- Mental health
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Chronically ill -- Social conditions
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| Genre/Form |
Electronic books.
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| Added Author |
Montesi, Laura, editor.
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Calestani, Melania, editor.
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| Other Form: |
Print version: Montesi, Laura. Managing Chronicity in Unequal States. London : UCL Press, ©2021 9781800080300 |
| ISBN |
9781800080317 (electronic book) |
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180008031X (electronic book) |
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9781800080287 (electronic book) |
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180008028X (electronic book) |
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9781800080324 (Kindle electronic book) |
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1800080328 |
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1800080301 |
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9781800080300 |
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1800080298 |
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9781800080294 |
| Standard No. |
AU@ 000070440403 |
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AU@ 000070494030 |
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UKMGB 020328568 |
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AU@ 000070272512 |
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